More of the same...

Blood counts are the same today (ANC is 48) so we are doing more isolated hanging out and waiting. He slept well last night and seems to be feeling good today. I'm going to talk to the doctor about trying to get him off tube feeds but I'm thinking it might take some time...even though his mouth looks so much better, he's still holding his mouth in weird positions and seems sensitive. We are stir-crazy but are just so thankful for a happy boy!