Thursday, May 21, 2015

Live Music

Michael is going to be doing a live performance of all the songs on "Songs in the Night", along with some other music, on Saturday June 6th. If you are in the Greensboro area, we would love to see you. The concert is at 7pm at Hope Chapel (1825 Spring Garden St) and it's free. There will be a great band, including string quartet. Hope to see you there!

Saturday, June 6 at 7:00pm
Hope Chapel
1825 Spring Garden St
Greensboro, NC 27403

Tuesday, May 19, 2015

Video of Watts Ringing the Bell

We passed another treatment milestone yesterday as Watts got his final chemo infusion at Brenner.  It was a happy, happy morning and Watts got to ring the bell surrounded by his beloved nurses and doctors. We are so proud of our little superman. He now has only ten days left of chemo at home (steroids, MTX, and 6-mp).

Our dear friend Alisa came with us (I got to be with her when she rang her own chemo bell!) and took pictures and surprised us with this video:

Sunday, May 17, 2015

The long awaited bell-ringing.

Tomorrow we go to Brenner for Watts' last dose of Vincristine. After his appointment, Watts will get to ring the bell in the clinic to commemorate his last chemo infusion at Brenner!

We are playing it up big for Watts and are all going to wear his favorite Superman shirts. After tomorrow, he will head into his last week of steroids and then a week of another oral drug that he takes at home. On May 29th, he will be done with treatment! Twelve more days to go.

Tuesday, May 12, 2015

Last Month of Treatment (in pictures)

These may not necessarily be in order, but I wanted to post some pictures for those of you who don't follow me on Instagram. Watts has been a trooper the last month and is currently only 17 days away from ending treatment (!!!). He has no clue what that means, but we are starting to talk about it more and are counting down the days for him.

Waiting to see Watty's doctors a couple weeks ago.
He's "spraying all the monsters" with the tube accessing his port. 

Waiting for Watts to wake up from his last lumbar puncture. 

Having a rough time waking up from sedation.

Steroid days call for staying in pjs...
And pasta for breakfast...
And lots of snuggles.
Papa-loving (and done with second to last round of steroids).
He always sleeps with a car...Lightening McQueen preferably.
His hair is so long that we have to put it in a man-bun to keep it out of his eyes. 
 IVIG transfusion. [He's napping, not sedated.]

Counting down and celebrating each milestone and chemo dose.
A rare family picture!

Songs in the Night available now

About a month ago, I (Michael) released "Songs in the Night", a recording of seven songs I wrote during the past two years of Watts' treatment. I know that lots of you pre-ordered it, making it possible to record the album... thank you! For those of you who didn't and are interested in getting a copy, I wanted to give you the links. I'm proud of how it turned out– in the sort of way one is proud of a scar; because it tells a story. Our story and, in many ways, your story, too.

What I mean is that many of you have cared for and walked with us during these two years, so you are part of Watts' story. But of course, suffering and struggle are inevitable– something that binds us together as human beings– and so these songs tell your story, too.

You can download the album on iTunes and Amazon. Or, if you want a physical copy (which also includes the download), you can get in on my Bandcamp site.

I hope the songs encourage you. If there's someone you know who might like to hear them, please pass on the links or let me know. I would love to send them a copy. I'm also working on some plans to play these songs live and will let you know as that develops.
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