Monday, October 7, 2013


Watts is currently hooked up to a million wires for a 24 hr EEG. We are hoping and praying that he does one of his weird eye things while on the monitors.

As of right now, the doctors are thinking that the disoriented, cross-eyed moments that he has been having, are NOT seizures but are more disorientation caused by the HD Methotrexate. Which would be fantastic. Apparently, not only can MTX cause mucositis, rashes, loss of appetite, and mouth sores, it can occasionally cause high fevers, disorientation (difficulty walking across the room, keeping eyes steady, etc.), and sometimes seizures. They don't know for sure that MTX is the source and they don't know for sure that it is not seizures, so they referred us to Neurology who, consequentially, ordered the EEG. And that's where we are now... waiting with our wire-laden boy, hoping to push a literal big, red button when he starts acting disoriented. Hoping for sooner rather than later.

I've been doing okay for the most part, but, after the agonizing process of watching them place the EEG probes on Watts' head, I feel very grumpy and very tired. I am searching my heart for all blessings that surround us...even here.

Watts' fever has broken. 

Gigi is here to help with Piper. What a gift! 

Michael did the hard work of holding Watts down for the EEG.

Hot showers after sleepless nights. 

The EEG is painless (after the initial placement of the probes). 

Dark chocolate with toffee and almonds from Trader Joe's.

Watts is currently napping peacefully.
Watts' is done with HD Methotrexate!

We've had some encouraging visitors that have brought us food and hugs. 

 The last four nights we have had our absolute favorite night nurses.

This YouTube video. Watts loves does 95 million other people. So strange.

Grace and forgiveness for my ugly times.


  1. Your ability to see blessings among the chaos is so inspiring. Praying for you guys.

  2. I'm not sure whether I'm more disturbed by the fox video or the problems with Watts. I think I'll just pray for you all - in sincerity and humor ;) Hang on to those blessings, few though they may seems sometimes. God is good, all the time. And thanks, now Evie is singing "What does the fox say?" over and over and over and over.....

  3. Keep hanging in there! God will not give you more than you can handle! Thank you so much for doing this blog, I am being blessed in numerous ways!


Site Design By Designer Blogs