Tuesday, December 31, 2013

Steroids done & 2013

Well, day 5 was a lot rougher on little Watts. He still had a couple hours of feeling more normal but  was mostly weepy and clingy. On top of that, last night was a doozy. He was up multiple times with one wake-up lasting a couple hours of him intermittently crying and eating. We are a little delirious this morning, but done (for another month) with the 'roids! Waiting now for Watts to wake up and hoping that the steroids will get out of his system quickly. Watts is up now and is a mess this morning. Hopefully he'll be feeling more like himself soon.

On Thursday we will head to Brenner to get IV MTX (count dependent, though) and spend several hours getting an IVIG transfusion due to very low immunoglobulin level found at last blood draw. IVIG, in layman's terms, is the antibodies of over a 1000 donors and will help Watts' fight of a number of different infections. This trip to Brenner will not include a dressing or cap change thanks to his new port!


Thank you for the prayers and support this year. We have been overwhelmed (in a good way) at the love and care from our community and complete strangers during this difficult journey our family has been on. It is hard to imagine how we could have made it through without being so surrounded and uplifted by those around us. So, thank you!

Happy New Year!

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