Friday, May 31, 2013

Rambles

Day 6. At the end of a long day, I sit. Music plays quietly next to Watts and the ICU is quiet. Today has been slower, more time to ask questions, more time to come up with a game plan. 

Watts is stabilized and sedated, sleeping peacefully amidst the tubes and wires and beeping machines. His body is swollen, but his color is better and he's fighting like a champ.

We've been trying to be here for Watts, talk to a million doctors, sign papers, get a crash course on medical jargon/leukemia/infections, pump every 2 hours to salvage supply, and attempt to process and wrap our heads around all that has happened in the last 6 days. All while trying to somewhat normalize everything for Piper. Sweet, strong Piper. The past few days have been incredibly rough on her tender heart. 
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6 days. Last Thursday, we grilled out on the back deck and laughed at the kids' funny faces and antics, a week later we are here. Last Friday morning, we all went on a 3 mile run and got bagels at Breuggers, this Friday we will be at Brenner. How quickly life changes.

Taped above Watty's head are six pictures of him smiling and laughing with his papa, sister, and me. Even in only 6 days, it's hard at times to remember  what life was like when everything was normal, when he was "healthy."
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His blessings cover us. Throughout the day we glimpse them, even in the midst of chaos. I've started jotting them down, in true Ann Voscamp style, a chronicle of beauty through all of this.
   

That we have a diagnosis and treatment can start.
The humor (and confidence) of the ambulance respiratory transport team that took Watts and me from Moses Cone to Brenner.
The kindness and awesomeness of Dr Sam Ajizian.
Ronald McDonald House.
Love and support of everyone. 
Supernatural strength for Michael and me to function under all of these circumstances.

 And the list goes on and on.
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Throughout the past six days, the words, "He makes all things new in His time" have been pounding through my head... while holding my thrashing fever-stricken son in the ER, while jogging behind the stretcher towards the ambulance to head towards Brenner, while sitting in the little room with the doctors receiving the worst news of my life.  He's been in every moment through all of this...dark as it might seem, I feel cupped in His hand.

7 comments:

  1. My heart aches for you guys. But, I know a Savior who makes all things new. During times of deepest doubt and misery, His light shines through and provides hope and faith. No sickness, no disease, not even death can conquer our Lord and Savior. Our God won't fail us. He won't fail you. This is His promise that we must take with faith. I know your faith is shaken. When I heard the news, my heart sunk. But I know that in times like this, often, that renewal you spoke about in your blog comes through. I believe it. I embrace it. I have faith in it. I believe healing and renewal will be in Watts' body. I believe healing and renewal will be in your family. Both Cat and I love you guys so much. My thoughts have been with you, constantly, since Cat told me the news. Know that if you need anything from us, we are merely a phone call away! Love you! - Greg Sykes

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  2. He will cover you with His pinions, and under His wings you may seek refuge; His faithfulness is a shield and bulwark. Psalms 91:4
    Praying this reality for your family today...
    In His Love

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  3. Tears, Hannah and Michael. Praying so hard for Watts, and sweet Piper. He is faithful.

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  4. Hannah, my thoughts are with you this afternoon. I am praying and holding you all in the Light. I know you have a wonderful support system in GSO but if for some reason you need a last minute sitter, etc PLEASE don't hesitate to contact us.

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  5. I've shed many tears for you guys-though there is great hope in Watt's healing, I know it is sad and hard to face the unknown and watch him go through this. I am on my knees for you continually-this burdens my heart so much. I wish we were not leaving next week for two months and could be around to help carry you, but know I will be praying and praying and praying.

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  6. So thankful you are seeing the blessings God tucks in our journeys and feeling the tremendous grace if being carried by God and sustained by prayers. I am sorry you have to travel this road. As a cancer mama at Brenners I can say I know all to well what you are facing. We too love Dr. Sam!! He is a true angel on earth. He did my daughter's daily 8 rounds if radiation and blessed us in so many ways. He even baked my daughter cookies on the last day- himself! I just want you to know we are here if I can help in any way or answer your questions.

    With prayers,
    Amber Scavo

    Our blog address is...
    Www.littlepapiandpunkin.blogspot.com

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  7. I whisper prayers with you...

    "In nothing be anxious, but in everything, by prayer and petition with thanksgiving, let your requests be made known to God." Phil. 4:6

    With you... praying right now...
    Eucharisteo,
    Ann

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